|GREATER SPRINGFIELD Ananda Yoga is pleased to announce that it is dedicating the entire month of April as a fund-raiser for the Childrens' Craniofacial Association (CCA). |
During the month of April, all yoga classes at the studio will be paid by donations and the revenue will be donated to this national organization dedicated to improving the quality of life for people with facial differences and their families. CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions and its mission is to empower and give hope to individuals and families affected by facial differences.
The month-long fund-raiser will begin with a kickoff party on April 1 at 7 p.m. at Ananda Yoga, 41 Russell St., Hadley. The public is invited to attend and meet the Cox family who inspired Justine to hold this event. There will be free food and beverages and a prize raffle of which all proceeds will benefit the CCA.
Enjoy a chair massage by Kala Viv Williams who will donate 50 percent of the proceeds to the CCA. Local artist Christine Texiera will be on hand to sell her prints of which 75 percent of the proceeds will be donated to the association.
For more information about the CCA, visit www.ccakids.org.
Ananda Yoga offers classes every day of the week including Beginner Yoga, Introduction to Vinyasa Yoga (all levels), Vinyasa Yoga, and Heated Vinyasa Yoga where the studio is heated to 90 degrees. They also offer Massage Therapy.
Justine Budhram of Ananda Yoga chose to support CCA with this fund-raiser because they have been such a resource and support for friends of hers who have a baby with a rare genetic syndrome called Pfeiffer's Syndrome. In their words, here is their story:
"A month before our daughter, Nova, was born, we were told she would be different, but no one could tell us how, why, or what to expect. The rarity of her syndrome falls outside of the 10,000 anomalies which high risk children are tested for in utero. So the fear of the unknown stayed with us even after her birth; the multitude of symptoms could not be identified until specific genetic testing was done. Pfeiffer Syndrome affects one in 100,000 by most estimates. Our Nova was one. The information available on her condition was barely enough to fill an index card, until we found CCA.
"Through the CCA, we learned that Pfeiffer Syndrome is part of a family of similar rare genetic syndromes that affect the growth of bones, primarily in the head, and sometimes in other extremities. For the first time since before Nova's birth, there was an abundance of information. We were able to research not only her specific condition, but qualified treatment centers. We were given a way to find other families whose children were affected by this and other syndromes, and opportunities to meet with them and become friends, no longer with the feeling of isolation that overwhelmed us. We were able to finally get an idea of what this might mean for our family, what would become of our little girl.
"We were reassured that should financial concerns about Nova's treatment arise that they could help. With eight surgeries before she was 16 months old including two skull surgeries, we have been extremely lucky not to have to need any. They even provided us with literature specific to Nova's condition to share with our family, friends and care workers who had never heard of Pfeiffer Syndrome and what it would mean for our Nova.
"We have been so grateful to the CCA for helping us through one of the hardest things that we have ever faced, that they are there to provide not only us with this support, but other families as well."
For more information about the fund-raiser, call Budhram at Ananda Yoga at 563-6314.
Additional information may also be obtained by visiting Ananda Yoga's Web site www.ananda-yoga.us or its Facebook page, www.facebook.com/pages/AnandaYoga/129977543698378.
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